TOWARDS A NETWORK OF PATIENTS’ ORGANIZATIONS IN GHANA

Sharecare is searching for other patients’ organizations to initiate discussions on a national network of patients’ organizations and inform them of the benefits of joining the International Alliance of Patients’ Organizations (IAPO).

WHAT IS IAPO?

The origins of IAPO lie in healthcare conferences from 1994 to 1996 at which patient group representatives met and realized that regardless of their disease area they faced common healthcare issues, such as access to information and patients’ rights. With further discussion with stakeholders it was officially registered as a not-for-profit foundation in The Netherlands.

IAPO has over 200 members spanning over 50 countries and 50 disease areas and through membership representation of an estimated 365 million. It is a unique global alliance promoting patient-centered healthcare around the world.

IAPO’s Vision: IAPO’s vision is that patients throughout the world are at the centre of healthcare.

IAPO’s Mission:  IAPO’s mission is to help build patient centred healthcare in every country.

Objective of Mission:

  • Realizing active partnerships with patients’ organizations and maximizing their impact through capacity building
  • Advocating internationally with a strong patients’ voice on relevant aspects of healthcare policy, with the aim of
  • Influencing international, regional and national health agendas and policie
  • Building cross-sector alliances and working collaboratively with like-minded medical and health professionals, policy makers, academics, researchers and industry representatives.

Membership: The members are the most important aspect of the International Alliance of Patients’ Organizations – these are the groups who are working to support patients around the world and to promote patient-centred healthcare in their own country or region.

WHAT IS PATIENT-CENTRED HEALTHCARE?

According to IAPO’s Declaration on Patient-centred healthcare, health systems all over the world are under pressure and cannot cope if they continue to focus on diseases rather than patients; they require the involvement of individual patients who adhere to their treatments, make behavioural changes and self-manage.  Patient-centred healthcare may be the most cost-effective way to improve health outcomes for patients.

IAPO believes healthcare must be based on the principles of respect, choice, patient involvement in health policy, access and support and information.

AFRICAN REGIONAL STRATEGY

In 2010 IAPO defined its Regional Strategy which aims to create regional networks, develop the capacity of patients’ organizations in each region and enable regional networks of patients’ organizations to communicate a strong and unified voice on shared agendas.

In relation to this objective, the overarching objectives for the Africa Regional Strategy are to:

a) Bring together patient groups from across the region in an active and empowered network

b) Develop the capacity of patients’ organizations in the Africa region

c) Enable patients’ organizations in Africa to communicate a strong unified voice on shared agendas.

NATIONAL NETWORK

Sharecare believes that the formation of a national network is the first step towards carrying out this strategy. We are therefore asking other patients’ organizations in Ghana to join us in the discussions for a national network of patients’ organizations

We would appreciate it if interested organizations could contact us by emailing sharecare4u@gmail.com for further discussions.

Thank you.

Executive Director

3 thoughts on “TOWARDS A NETWORK OF PATIENTS’ ORGANIZATIONS IN GHANA

  1. Yes we second the fact that more attention would be given on patients rather than diseases and patients involvement in health policies so that the needed and accurate information can be obtained

  2. This is an important step and I agree that collaboration with other patient groups is an important step towards improving patient care. Engagement in health care particularly for chronic sufferers is usually biased in favour of the health practitioner. Many chronic sufferers require ‘soft’ support as well, such as dealing with the psychological trauma of their conditions and also stuff like maybe having a fast track service for wheelchair bound and other patients struggling with mobility issues. The classification of the medications used by our group to receive subsidy, and the mandatory inclusion of physiotherapy as an important adjunct to the medication regime would go a long way towards alleviating suffering. Perhaps I’m going off track here, but suffice to say……..
    The more the merrier, perhaps those silent voices will be heard at last through patient empowerment.

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