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The test I couldn’t get

February 19th, 2007 · 5 Comments

For us in the developing world, getting diagnostic tests from some developed countries is made impossible.
I found out from the website of Mayo Medical Laboratories (MML) in Minnesota in the US that they have a definitive test for diagnosing Devic’s Disease. I wrote to them and they kindly sent me the detailed procedure and forms for getting my blood sample to them.
Since they said I could ship it by courier, I contacted both Fedex and DHL but they both said they are not permitted to transport blood samples to the US. They said the only samples they accept are from the US embassy here for DNA testing.
Obviously, MML has been receiving samples by this method from other parts of the world; otherwise they would have said straightaway that it’s not done.
So I’m still not sure whether I have Devic’s or Multiple Sclerosis, when this test would have ruled out one, to make my life easier.

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5 responses so far ↓

  • 1 Candy // Feb 20, 2007 at 11:19 am

    Why dont you ring up the US Embassey and ask if you could send your blood sample through them explaining the problem?

    They may say YES!

    Or?

  • 2 Lou (Linda) // Feb 21, 2007 at 3:02 am

    You can have a brain and C-spine MRI. That’ll show if you have MS. Much easier than fighting beaurocracy and red tape to try to get blood samples shipped. Good luck to you!

  • 3 Nana Yaa // Feb 21, 2007 at 11:11 am

    Thanks Lou. I have done had the MRI (several over the years in fact), but there still seems to be some confusion. The report of most recent one I had on 8th Dec. 2006 said:
    MRI – BRAIN, CERVICAL & THORACIC SPINE
    Serial images of the brain with gadolinium show microplaques formulation anteriorly on the left and bilaterally in the periventricular white matter of the size of match stick head.
    Spine images show a solitary bigger plaque along the thoracic segment at TH7 and confluents of intramedullary thin strip of increased signal intensity on T2 along the cervical segment.
    Impression – Multiple sclerosis.
    Gibberish, I know to many. But my doctor says it could be Devic’s Disease.
    I guess they are so similar I really shouldn’t be bothering myself, but it would cut short my long explanations whenever anyone asks what’s wrong with me.

  • 4 ghanagirlnyc // Mar 5, 2007 at 4:23 pm

    Did you see this:
    http://www.devic.org.uk/forum/viewtopic.php?t=639

  • 5 Area Of Kids // Aug 16, 2007 at 10:13 pm

    Thanks for sharing this information. Really is pack with new knowledge. Keep them coming.

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