Sharecare Ghana Ltd.

The registration of Sharecare Ghana has finally gone though and I’m so thrilled!!!

A little bit about the organisation:
Sharecare Ghana is a support group for people in Ghana with rare neuro-immunological conditions – Transverse Myelitis, Acute Disseminated Encephalomyelitis (ADEM), Optic Neuritis, Neuromyelitis Optica (Devic’s disease), Multiple Sclerosis and Lupus (which are also rare in Ghana).
The objectives are to:
* Create awareness about these diseases, which were hitherto unheard of, or undiagnosed in these parts;
* Facilitate visits and meetings of people with these conditions and their families;
* Get specialists to give educational talks to members and their families;
* Act as an advocacy group to put pressure on local and national health authorities to treat neuro-immunological diseases with the seriousness deserved in the national health care delivery system;
* Advocate for subsidized long-term drug treatment;
* Advocating research into these conditions;
* Raising funds for research;
* Advocating proper implementation of the Disability Act of Ghana;
* Networking with similar support groups locally and worldwide;
* Hosting a website for people with long-term illnesses to share their experiences and treatment options.

Sharecare Ghana is the Ghana Support Network of the Transverse Myelitis Association (TMA).
I’ll keep giving you updates.

4 thoughts on “Sharecare Ghana Ltd.

  1. Always had faith in you strong lady
    and yu’ll go from strength to strength
    and your strength will spread across
    yr land
    and all lands

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