Sharecare4u Blog

an online community

Sharecare4u Blog header image 1

Heroes Are Made in Unexpected Circumstances

April 16th, 2018 · No Comments

By Ankit Shah (name changed)

‘’I would like to see ANOTHER well articulated, inspirational piece of work coming out soon. Your endeavor to help others should act opposite to the Law of Diminishing Marginal Utility’’, said readers who were the influential spirits behind me keeping the flow of communication on Isaac Syndrome, a diverse disorder as a result of muscular hyperactivity.

My previous Case Studies ‘My battle with Isaac Syndrome, and the struggle for a cure’ AND ‘Isaac Syndrome: Here’s what you can learn from my experiences’ were my attempts to pen down information on various aspects involved while coping with daily life and to inspire patients to be uncomfortable with a bailout option.

Purpose of this Inscription

Recently saw this epic film, Forrest Gump again, but this time it took my imagination on a ride.

A couple of years back I had taken up Table Tennis to recover from my workload; it was a rejuvenating experience. It’s like a drug free high-vitality sport without the risk of collision injuries where finding out what your opponent is thinking does matter. My racket, had gathered dust when I decided to rerun the episode, this time to try conquering health setbacks; only apprehension being my mum’s best china.

Your idea of fun will change

So that’s how I found myself one fine day getting a TT table installed at my place trying to overcome years of pain and stiffness in my muscles.

The initial assessment of my hand movement was made by a close friend who qualified in fine motor skills and had experience in Sports Medicine. I visited a qualified table tennis specialist with an idea of getting the right advice before taking up the sport. The only constant thought running was to be at my best and keep attempting for a bailout.

Finally the day arrived when I decide to try out my new racket and the newly installed table.

I decided to wear my activity tracker band to record my personal metrics. I found it way ahead in gauging my personality and constantly pushing me to new limits. Recuperation methods are faster these days but it’s still essential to improve flexibility as a crucial part of the overall treatment regime.

All of a sudden, my muscle memories got activated and reran old episodes of playing with friends where we roared, ran around like hooligans and ate our favorite course during breaks. I still felt grateful for this current moment.

I started to concentrate on watching the flight of the ball bouncing towards me from the other side. It abruptly changed direction. I slowly indulged myself to prove whatever I lacked in talent should show in stamina. Initially it was like dodging a bullet, trying hard to beat my opponent, but I took it as any other therapy.

During playing sessions, I still have to take unwanted breaks but would like to believe that resistance is slowly building up; if not, at least it makes me feel like a warrior for some time. Every shot I hit takes me closer to feeling a notch healthier.

I discreetly recollect one of my sessions where I met my nightmare of having a severe back spasm which knocked me down for three days, completely out of action and made me realize why NASA studies said that table tennis is the most difficult sport to practice because of its complexity in the use of muscles, more than 80% from feet to neck. The wish of bouncing back was so powerful that it got me to high spirits on the fourth day.

My longest rally without break was around 6 minutes which almost took me to some celestial space but exhausted me the very seventh minute. As I come towards the end of my narration, I’m still trying a good acceleration and grip over a strong synergy between the sport and myself. Heroes in the sports field or one’s battle with any ailment have much in common.

My story raises a couple of interesting questions, at least in my mind:- 

  • First of all when and how did my game change for the better?
  • Did the impact of this current set-back leave me stronger than before?

The only answer was to keep learning and build stronger experiences:-

  • Change is indeed possible
  • One can use today’s technology to your benefit
  • Focus on postures can reduce pain and increase fun
  • Taking up a sport can add to your disciplined lifestyle
  • Re-educate yourself about the condition and modify habits
  • Understand the difference between what ‘you should’ and ‘can do’.

The Shadow Analogy

I started to draw out analogies between taking up a match in table tennis and Isaac Syndrome. The conclusion was:-

  • A person who is gracious in defeat in a match or his pain, is set to recover and win
  • If it doesn’t challenge, moving up the ladder is like a dream with open eyes
  • There are two ways to conclude a match or battle a disease, you’re either in or out
  • Being deprived of winning a game or any suffering is just a temporary phenomenon, it might be for some time but if we quit, it becomes a habit and lasts forever
  • For us to move faster in life, situations need to get out of control
  • Heroes in sports or one’s battle with any ailment have much in common
  • Find something that gives joy, and the joy will burn out the pain
  • Be in control: -One’s grip is an important aspect (in a game or a life situation).

Conclusion:-

‘Competing for a trophy’ is old, let’s walk our talks and get counted.

This article sought to ignite the conversation around alternative drug free therapy.

If you wait for another case study, it will be too late.

→ No CommentsTags: Uncategorized

How did We Ring the Bell?

March 23rd, 2018 · No Comments

— The Manifesto —

9 OUT OF 10 CHILDREN WITH A DISABILITY ARE NOT WELCOME AT SCHOOL.

Countries have mutually agreed* that it should be possible for all children to go to school, no matter what. This includes children with a disability. But this vulnerable group is frequently left behind at home, and if we don’t act, will also be left behind in life. We are sounding the alarm bell and saying:

ALL CHILDREN ARE WELCOME TO SCHOOL, INCLUDING CHILDREN WITH A DISABILITY.

Hence, 10 urgent action points:

  1. All children want to be able to reach school.
    Provide children with disability (adapted-) transport to school.
  1. All children want to be able to enter and pass through the school.
  2. All children want to be able to visit the restroom.
    Provide an adapted restroom at every school for children with a disability.
  1. All children want to receive ‘honest’ education.
    Adapt lessons and rules for children with a disability.
  1. All children want to play.
    Allow children with a disability to participate in sports and games at school.
  1. All children want friends.
    Teach children how they can be there for children with a disability.
  1. All children want parents to help.
    Stand up as parents for children with a disability.
  1. All children want good guidance.
    Train teachers on how they can better counsel children with a disability.
  1. All children want positive attention.
    Children with a disability have the right to go to school.
  1. All children want to just be kids.
    Let children with a disability advance and enjoy.

Finally:

It is high time that ‘accessible education’ becomes a reality in all nations. All children with a disability must feel really welcome at school, wherever they are in the world.

So please sign and share this manifesto. On behalf of all children with a disability, Thank you!

The Liliane Foundation

* As stated in the UN Convention on the Rights of Persons with Disabilities (CRPD), the UN Convention on the Rights of the Child (CRC) and the 2030 Agenda for Sustainable Development.

And pictures from We Ring the Bell at Osu Presby cluster of schools

→ No CommentsTags: Uncategorized

Count down to 21st March 2018…

March 18th, 2018 · No Comments

→ No CommentsTags: Uncategorized

We Ring the Bell on 21st March 2018

March 12th, 2018 · No Comments

By Abena Serwaa Bonsu

Sharecare Ghana will join other partner organizations of SWEB (Samuel Wellington Botwey) Foundation to Ring the Bell on 21st March 2018 under the theme “All children welcome in school!”

Ring the Bell creates awareness of the need for every child to be in school regardless of his or her condition. The main objective is to focus on accessibility, acceptance and adaptation as preconditions for every child to go to school.  

The fact is that, 9 out of 10 children with disabilities are not welcome at school because of poor physical accessibility of schools, curriculum not suitable to all learners, lack of acceptance within schools and community and social difficulties etc. All children can go to school if we focus on accessibility, acceptance and adaptation as preconditions for every child to be in school and also train our teachers to handle children with special needs.

We Ring the Bell with five minutes of noise for children with disabilities worldwide that cannot go to school. Students, teachers, local leaders and government representatives will Ring the Bell with us at the Osu Presby cluster of schools in Osu and after 21st March, SWEB Foundation and partner organizations will continue with advocacy activities throughout the year.

→ No CommentsTags: Uncategorized

Farida will be speaking at the African Women’s Leadership Conference…

March 7th, 2018 · No Comments

www.wellesley.edu/awlc  We are proud of you Farida!

→ No CommentsTags: Uncategorized

Special Mothers Donate

February 13th, 2018 · No Comments

Thank you, Special Mothers Project.

Read more here: http://specialmothersproject.blogspot.co.ke/2018/02/special-mothers-project-supports-five.html?m=1

→ No CommentsTags: Uncategorized

Christmas at Kinder Paradise

December 31st, 2017 · No Comments

→ No CommentsTags: Uncategorized

Christmas 2017

December 31st, 2017 · No Comments

The children enjoyed the Christmas parties at Mmofra Park and Kinder Paradise. We say a big thank you to all sponsors of these parties. God bless You! Pictures below are from Mmofra Park party.

→ No CommentsTags: Uncategorized

Project Report on Equipment & Monitoring for Children

December 3rd, 2017 · No Comments

 

 

 

 

 

 

 

 

 

 

 

 

 

FINAL REPORT 2017 SHARE CARE GHANA (Opens in PDF file)

→ No CommentsTags: Uncategorized

Donation to parents

October 20th, 2017 · No Comments

Twelve parents who attended physiotherapy on Friday 13th October, 2017, were the lucky recipients of GhC250 each from Mary Posch-Oduro, who was celebrating her birthday. The donation was made by Mary’s children. We say a big thank you, and may God bless you richly!

→ No CommentsTags: Uncategorized