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Count your blessings

February 27th, 2007 · 6 Comments

After seeing an MSer sitting on his heels unsupported in a pic the other day, I told him to count his blessings and described how I get on and off the floor. I place one hand on the bed, lower myself and land on my bum – and I mean land.
Getting up, i roll myself onto both knees, place one foot (the right which is stronger) on the floor, put my hands on the bed and heave myself up. And I had to learn to do this!
So we need to count our blessings. Mine are in the ability to go down and come up, which I couldn’t do before, and others for taking it for granted. You want to sit on the floor, you sit, you want to get up, you get up. ‘
There’s a lot to be thankful for.

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6 responses so far ↓

  • 1 carriella 'vixen' shaw // Feb 28, 2007 at 4:12 am

    not sure theres any blessings to be associated with epilepsy but you seem such a sweet person i m send you a BIG HUG and CHOU HEALING ENERGY

    stay strong

    carriella i shaw

  • 2 Nana Yaa // Feb 28, 2007 at 11:43 am

    A BIG HUG to you too Carriella and thanks for the healing energy.
    Ever the optimist, I guess the blessing is that epilepsy can be controlled. That’s what those of us with incurable ailments are all doing – controlling our symptoms, until they find a cure.
    Much love.
    Nana Yaa

  • 3 carriella 'vixen' shaw // Feb 28, 2007 at 7:29 pm

    sending you big hug back and reikie kiss on forehead-

    just had to have another eeg and got told that i ve got ‘electrical iregularities’
    [yes thank you doc i d never have guessed that lol]
    the most embaressing thing is that when i mal i’m only out for a few sec’s but those few secs are enough to, um, how can i put this, need to change my knickers basically.
    what makes it more embaressing is that as well as standard triggers like strobes or vid games i can go ‘void’ when i m feeling happy/energetic or frisky then suddenly everything flashes white/green and uh-oh

    actually my top 2 cringe moments where
    dancing on a podium in white silk cargo pants and them and being soooo into the techo that i did nt notice what had happened untill tunes had stopped – how red did i go? i was mz tomato girl
    but this realy nice security laddie covered me up with his coat.
    Other peoples attitudes are so important as well, i mean urines sterile and i keep change of undies and handy wipes in my bag so its hardly like i was peeing flame and setting floor on fire BUT if i m surrounded by a group of strangers staring, pointing and commenting then it used to make me cry as teenager.

    In terms of controlling the mals in western med terms ‘tegs are skegs’ because they make me feel dopey in wrong way and barbs to slow neuronal connection rate makes me feel like the porridge gremlin has puked all over my cereberal cortex-
    but i m realy lucky in knowing some realy realy realy mooky people esp a certain group member who fed my chocale with fresh ginger and relexoology massaged my feet with peppermint lotion which is a total ‘ooohhh woooo’ of a pleasure combination
    mmmm choc with ginger

    sending love love love to all and heading to the fridge

    be blessed

    carri ix

  • 4 carriella 'vixen' shaw // Feb 28, 2007 at 7:35 pm

    oh i will send that chou energy as well
    just been browsing the net and theres some cool pvc undies on there as the plastic pants option makes a crinkling sound

  • 5 the vix chick // Mar 3, 2007 at 11:40 pm

    just want to thank a ‘fellow’ who posts here for getting me the liner pads and m+S cotton knickers

    good kit indeed

    sending you waves of ‘hot red’ energy

    [know what i mean?]

  • 6 carri // Mar 28, 2007 at 11:21 pm

    Over the last few days of fever/mind-slips the amazing patience show by both my dad,his new lass that dos nt realy know me an old friend a a new partner have been blessings to me as they ve listening to me rant/rave/moan and caterwaul,berate and be a mega-bitch to all in earshot.

    Just thanking everyone whose been treasure’s whilst i ve been in hydra hearted harridan mode.

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