Sweetness Shares her Story

Our first meeting for the year 2020 was amazing. Sweetness from Oyemam Auto-immune Foundation shared with us her lived experience as a person living with Lupus, the challenges she went through, the high cost of treatment, her call to the Government to support the treatment care and support for persons living with auto-immune conditions and her Faith in GOD that kept her going. The mothers present were empowered by her story to keep up the fight against autoimmune and neurological conditions and to support the cause of calling out to the Government to support the treatment of autoimmune and neurological conditions by its inclusion on the NHIS and awareness creation.

Sharecare – We Care❤️❤️❤️!

A Tribute to Mr. Gad

We try to find purpose at every stage of our life. For us at Sharecare Ghana, Mr. Joseph Gadagbui’s purpose was to organize us as an organization. Popularly called Mr. Gad, he guided and directed us, and we relied on him in every aspect of our work. As an association of persons with autoimmune and neurological conditions as well as families and caregivers, we gave mutual support and companionship, and we know he treasured this.

Mr. Gad was Company Secretary for Sharecare Ghana, but did much more than perform that role. He was our father and counselor; he chaired our support group meetings; he visited ailing members; he wrote our letters and guided our administration… and we did not have the opportunity to say thank you.

When he told us at our support group meeting in July that he had numbness in his shoulder and had been to see the physiotherapist, we thought it was the usual aches and pains of living with a neurological condition. We did not suspect that that was his way of saying farewell.

The news that Mr. Gad had passed on, shocked all of us. Everyone had something to say: Who is going to fight for my daughter; Who will ensure we get the District Assembly Common Fund; Who will follow up on the letter to the Director-General of Ghana Health Service; Who will put pressure on Parliament to include our conditions in the National Health Insurance Scheme…

Mr. Gad, you will be sorely missed by your Sharecare family, especially for your sense of humour.

Farewell and rest in peace, till we meet again.

Train the trainers for NCDs

By Christopher Agbega

Currently ongoing is the first of a three day – NCD Alliance Train the trainer workshop in Geneva – Switzerland. Participants from eight countries across the globe have gathered at the headquarters of the NCD Alliance for this training to further increase the impact of all National NCD Alliances in their respective jurisdictions which is in line with the advancement of the Advocacy Agenda of Persons Living with NCDs.

GENDER MINISTER VISITS SHARECARE REHAB CENTRE

The Minister of Gender, Children and Social Protection, Mrs. Cynthia Morrison has visited the Sharecare Rehab Centre at Osu Anorhor.

After interacting with the mothers and children and staff, she promised to facilitate a bigger accommodation for the continued existence of the Centre.

The Centre Manager, Mrs. Rebecca Sai had earlier told the Minister that it was impossible to continue paying commercial rent for the Centre, and that the space was too small for the number of children attending the Centre.

The GFD President, Madam Mawunyo Yakor-Dagba was in attendance during the visit.