And now Morocco

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My UK trip was really useful and fruitful. The doctor who very kindly saw me without charging a penny, said I definitely have Devic’s Disease or Neuromyelitis Optica (NMO) and there is no need for an NMO-IgG test. He said though this antibody is specific for NMO and related disorders, the test (now available in Oxford as well as Mayo Lab) is not particularly sensitive and can be negative in up to 30-40% of patients. He also treats his patients with Azathioprine, but would recommend a higher dose than what I’m on, because any relapse can bring further disability. NMO is a relapsing condition similar to MS, but in NMO the lesions appear on the spine, and the optic nerves are often affected, but not the brain.

I also saw a very interesting neuro-physiotherapist who showed me how to improve my gait and balance. I could feel the difference immediately after the session with her. She has a theory about eye movement and how it helps us keep our balance.

I attended a meeting of the UK Support Group of the Transverse Myelitis Association which was really interesting and gave me some pointers as to how to orgainise the Ghana group when I get back home.

Then of course I did the fun things like shopping, visiting friends and family, London Eye…

And now I’m in sunny Morocco where tourism is their number one resource. I’m really looking forward to the adventure I intend to have here.

7 thoughts on “And now Morocco

  1. Rabat is a beautiful city with part of the ancient city and walls still standing. Some of the houses are really palatial especially the King’s executive offices.
    The climate is lovely at the moment – not cold, not hot – but I hear when the hot season starts, I’ll have ro stay indoors till about 3pm. But it’ll be dry heat, not humid, so more bearable. The Atlantic Ocean on one side gives the city its beautiful beaches, but I haven’t braved that bikini yet.
    The colours of the fruits are to die for (in a country that is largely desert!) – dates, figs, melons, oranges, peaches, grapes, bananas, apples, cherries etc. etc.
    I hear every city here has its unique characteristic. I can’t wait to see the rest!

  2. If you’re going to come visit me in Popenguine you’ll have to brave that swimming suit!!! How are things going with registering Share Care Ghana – you should write about your frustrations 😉

  3. I’ll start wearing it at home… that should motivate me to do more intensive stomach exercises and then I’ll venture out in that suit. lol
    The registration. Hmmm, we’re getting there at last, but it was backwards and forwards for several weeks. The members are trickling in, so we really need to get things going now.
    Wish us luck!

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