2nd CP Awareness Campaign launched

The 2nd Cerebral Palsy Awareness Campaign was launched on World CP Day (6th October) at the Prince Emmanuel SDA Church in Ringway Estates, under the theme “Celebratlng and Creating Powerful Voices for People with Cerebral Palsy”.

Dr. Abena Tannor from Komfo Anokye Teaching Hospital gave a comprehensive presentation on the prevention and management of Cerebral Palsy. She explained the causes, signs and symptoms, effects, rehabilitation and  the role every Ghanaian should be playing.

She said:
Cerebral Palsy is a one time damage to the brain;
It cannot be cured but it can be managed;
Rehabilitation is very important;
Simple adaptive devices can help.
She showed images of simple devices that can be made at home to help children with CP.  
Dr. Tannor said Ghanaians should get involved:
Speak out
Education – rights,  inclusion, stigmatization
Volunteer
Employ persons with disabilities and 
Raise/Donate funds.

Farida Bedwei, a software engineer shared her experiences as an adult with  Cerebral Palsy in Ghana. She said her mates in primary school were very helpful because they had not learned to discriminate. She reminded people to ask how to assist a PWD rather than assume that they know.

Suzzy Darko of the Special Mothers Project recounted how her family had tried to cure her daughter of Cerebral Palsy and had given up on her because she would not go along with their methods.

Nii Anyetei Akogyeram founder of Cerebral Palsy Awareness Ghana launched the campaign.

 

 

 

 

 

 

Karmzah is here!!!

 

 

 

 

 

 

 

There is limited representation of children and adults with disabilities in the comics and cartoons. Some characters in Marvel’s X-Men have disabilities, e.g. Professor X is in a wheelchair and Cyclops is visually impaired; then there’s Misty Knight, an amputee with a bionic arm.

Considering the number of children and adults with varying disabilities worldwide there needs to be  a lot more characters they can relate to in the world of animation. According to statistics, Cerebral Palsy is the largest cause of childhood disability and there is no superhero or superheroine with Cerebral Palsy for children to identify with.  Having a superhero(ine) with such a condition would provoke more conversations about neurological conditions and lead to a broader acceptance into society as a whole.

Persons with disabilities are, most often than not, portrayed as helpless victims who need to be rescued or helped by their able-bodied counterparts. The focus is on their disabilities, not their capabilities. That perception will only change when we start focusing on their strengths, not their weaknesses.

With the introduction of a superheroine who, in spite of having Cerebral Palsy, fights bad guys and does the rescuing, we’ll be changing the narrative and making it seem, at the very least, not that big a deal having a physical disability. The character – Karmzah, still uses her walking aids, and is empowered through them. If she loses ahold of her crutches, she reverts to her ordinary self and can no longer fight, run or fly as she does with the superpowers.

The idea is to make the aids (wheelchairs, walking aids, hearing aids, etc) ‘cool’. If there are crutches that unleash whips and darts, and braces which allow the wearer to run superfast, it makes it more appealing to the average child or teen who has to wear or use them to get around.

Karmzah, jointly produced by Farida Bedwei and Leti Arts, was launched on World CP Day (October 6). Look out for a link to the app…

“We are tired of well structured speeches and sweet words”, Christopher Agbega says

The Ghana high level meeting on non-communicable diseases (NCDs) came off on 7th August 2018 at the Council for Scientific and Industrial Research (CSIR), Accra, Ghana. In attendance was the Minister of Planning and chair of inter-ministerial committee: implementation of the UN SDGs, Dr. Eugene Owusu, Special advisor to the President on SDGs; Dr. Kyei-Faried, Director, Disease Control and Prevention and tobacco control focal person Ghana Health Service, as well as other ministerial executives, member civil society organizations and the media.

Non-communicable diseases affect people. People everywhere in every country, rich and poor, old and young, in cities and in villages, the privileged and the vulnerable. Every year, over 40 million people die because of NCDs. However many lives can be saved if action is taken now. It is unacceptable that millions still live in environments that promote disease over health, that millions everyday are denied access to life-saving treatment and care, and that millions are denied dignity and their human right to live long and healthy lives.

Presentations were made on scaling up national action for the prevention and control of NCDs in Ghana, why the SDGs matter, and the imperative of addressing NCDs, and advancing NCD response from CSOs perspective. There was also a keynote address from the Minister of Health delivered by his representative.

Christopher Agbega, volunteer advocacy officer for Sharecare Ghana made a two minute intervention touching on personal experiences and strides made by countries like India to combat the surge of NCDs.

“We are on the brink of a major upset; one that will halt the progress of the entire nation. One that will reach the very core of our minds and leave us thinking: What did we miss? What did we overlook? In our quest for growth and development, did we care to investigate the kinds of products we were allowing into our country and unto our markets? To the FDA and regulatory authorities, we know you exist, but we can’t help but wonder…”, he said

He concluded by stating clearly that the NCD community has had enough of “well structured speeches” and sweet words.

“We need your commitments and interventions. We need your participation in all NCD related activities. Above all we need the meaningful involvement of PLWNCDs at the helm of affairs to adopt smart fiscal policies that promote health, boost NCD investment, step up action on child related health issues such as Cerebral Palsy and Obesity and save lives through equitable access to NCD treatment”.

Ghanaians urged to “go Green” on World CP Day

By Ghana’s Special Mothers Project

The Special Mothers Project, an advocacy and awareness creation programme on cerebral palsy issues in Ghana is calling on Ghanaians to wear something with a touch of green on Saturday 6th October

A statement issued and signed by Mrs Hannah Awadzi, Executive Director of the Special Mothers Project said  Ghana will join the rest of the world to celebrate World Cerebral Palsy Day, a day set aside to celebrate people with cerebral palsy and their care-givers.

World Cerebral Palsy (CP) Day marked on the 6th of October every year is also used to express pride in the lives and achievements of those with CP and the people and organizations that support them.

The colour green symbolizes “Hope”; wearing green will help highlight issues affecting people with cerebral palsy in Ghana and beyond.

Mrs. Awadzi said the Special Mothers Project as a way of creating awareness on cerebral palsy will be distributing information leaflets to people on that day.

This year, a number of organizations and individuals in Ghana are doing something in their own small way to mark the day.

Mrs. Awadzi said there is the need to create powerful voices for those with CP to change their world and connect organizations across the globe so they are better equipped to meet the needs of those with CP.

As a way of helping create solutions to everyday problems  of people living with cerebral palsy and also to act as a catalyst for social change and education campaigns that create solutions to universal challenges, the Special Mothers Project is organizing various training sessions for different stakeholders to enable more people understand cerebral palsy as a condition.

“There is going to be a series of special parenting summits to help empower parents of children with cerebral palsy while we engage the public to look at ways that everybody can be involved to enhance the lives of families raising children with cerebral palsy,” the statement said

World Cerebral Palsy Day celebration is a project coordinated by the World Cerebral Palsy Initiative, a group of non-profit cerebral palsy organizations with a global vision to create real change for people living with CP.
Cerebral Palsy is a neurological condition that affects movement and sometimes speech of children. It is the number one cause of disability in childhood.