I still suffer the effects of Optic Neuritis so when it gets hot, my eyes blur like they have been dilated. The doctor says it’s called Uhtoff’s Syndrome.
The thing about conditions like this is, you have to keep telling yourself not to panic. Whenever my eyes become less focused, I start wondering whether they are deteriorating again and if I’m going back into darkness. Then I take a deep breath and calm myself down, reminding myself that that is the nature of the condition, and I’ll be able to read again in the morning.
At least when you know what is ailing you, you feel like a solution will be found.
One can get a little carried away. After being bedridden for a long while, I tend to show off a bit when I have a flat surface to walk on and know I won’t trip.
I was swaggering around the other day, swinging my arms wildly, when my husband brought me back to earth with a bang. “Don’t get cocky,” he said, in jest, but also I know with a hint of seriousness.
He was the one who used to lift me into a sitting position to eat and help me transfer to a commode until it got so bad I had to go on admission in hospital.
A few days ago we were alone at home because our helper had the day off, and he wanted to go out. So I said, “When are you going to accept that I’m better and can stay home alone.”
He quickly looked for some wood to knock on, but I said, I was saying that in God’s name because He has brought me so far.
These are some of the heavier emotions we go through at home.
Thought I’d change the topic since there’s much more to say on using an aid.
One for my countrymen
Ghanaians are very helpful people. That’s the difference between us and people from other parts of the world.
I still use a walker when I go outdoors and in other countries, I could be invisible. But in Ghana, no matter where I go, there is someone offering to help me, sometimes even trying to lift me up a couple of stairs. It’s endearing.
I get more and more convinced that food is at the root of our health or illness. Last night I had two bananas for dinner and complained to the household that I was going to bed on an empty stomach!
I woke up felling very well and the “padding” under my left foot had reduced.
We really are what we eat.
I’ve always been a bit of a day-dreamer, but of late, I can’t just seem to still my thoughts. They flit from one thing to the other and actually interfere with my sleep.
I woke up at 3am and just couldn’t relax enough to sleep again.
I wonder if there is a link between inactivity and an over active mind or brain.
I think my neurologist can help me find an answer to this.
Woke up feeling a little low because I read someone’s comment on the forum on Gayle’s website (www.devic.org.uk), “don’t expect a miracle”. But then I thought about it again. Life itself is a miracle and I thank God for it.
Almost fifteen years ago I began an adventure. It wasn’t voluntary and it wasn’t pleasant, but I choose to call it that, because I’m learning to remove negative thoughts and words from my make up.
My body started to give up on me.
It began with vomiting and then numbness in the limbs on one side of the body which gradually came to surround my ribcage like I was enclosed in a cast.
What was happening to me? I went from hospital to hospital, underwent test after test. I had differing views from the doctors and drugs galore and gradually began to make a recovery of sorts.
My journey took me through improvements and relapses and more improvements, respiratory machines, near blindness, no hope and hope, doubts and faith. It has not been a dull or uneventful chapter of my life.
Keep reading for updates.