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“We are impatient for change”; The heartfelt voice of Ghana at the 3rd Global NCD Alliance Forum

March 5th, 2020 · No Comments

Chris in action

The 3rd Global NCD Alliance Forum took place from 9th to 11th February 2020 under the theme “Bridging the Gap: how to translate the global commitments into national and local actions, where we all live and work and play” in Sharjah – United Arab Emirates (UAE). The Ghana NCD Alliance participated in this forum organised by the friends for cancer patients which was attended by participants from the health sector, patient organisations and advocates from different parts of the world.

The sub-themes to the forum were: “Saving lives through transformative policies and solutions”, “Building demand for action through transformative social movements and voices of change”, and “Enhancing accountability through transformative and inclusive governance”, which over the three days were the subjects of a plenary session followed by parallel workshops to cover the issues in more depth.

The team from Ghana comprised the chairperson of the Ghana NCD Alliance Dr. Beatrice Wiafe, the national coordinator of the Ghana NCD Alliance Mr. Labram Musah, and advocates Christopher Agbega and Joshua Makubu.

At the “Our Views Our Voices” parallel workshop during the forum, Christopher Agbega the advocacy officer from Sharecare Ghana and the Ghana NCD Alliance gave an analogy that best describes the current state of NCDs in Ghana and the world at large.

“Take a very critical look at what is happening in Australia! The wild fires and its effect on nature and humanity. Families have been scattered, properties have been lost and wildlife has experienced a tragic incident so high beyond imagination. This is to give you a picture on the effects of NCDs globally if not checked. The burden of NCDs on families, the society and the nation is crippling. This is why I advocate; this is why I call for change and the enforcement of existing laws in my country”.

The team from Ghana participated in other parallel workshops like the civil society coordination session, think like a broadcaster: How to create compelling stories and increase media attention for NCDs, and the plenary session on building demand for action through transformative social movements and voices of change.

In a statement during the parallel workshop “A people-powered movement: Unleashing the untapped potential of people living with NCDs to turbocharge the response”, Christopher Agbega shared: my NCD journey, my impatience in seeing the government move from making commitments to actually taking action and how powerful the lived experience of persons living with NCDs can bridge the gap.

“The lived experience of persons living with NCDs is a powerful element in affecting the needed change. The NCD Alliance needs to be acknowledged for doing the work of the Government by bringing people affected by NCDs together, seeking their views and concerns on issues pertaining to their human rights, treatment care and support, prevention and their meaningful involvement in the fight against NCDs and creating an advocacy document out of their inputs. This document should serve as a guide to the formulation of national NCD policies. The call for persons living with NCDs to be meaningfully involved in advocacy, policy formulation, implementation and evaluation, and leadership should be highly considered and enforced to bring down NCDs”, he said.

Joshua Makubu during the plenary session reminded delegates that we need to involve people living with NCDs not because they have an NCD but because they have valuable skills or the capacity to become more than observers, or already have the ability to bring about change (such as those who are industry leaders or parliamentarians).

For more info on the Forum visit www.ncdalliance.org

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RARE DISEASE DAY 29th February 2020

February 27th, 2020 · No Comments

THE 2ND SYMPOSIUM ON RARE DISEASES AND ORPHAN PRODUCTS AS PART OF RARE DISEASE DAY 2020 AWARENESS. Venue : O&G Auditorium at Korlebu Teaching Hospital.

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Sweetness Shares her Story

January 25th, 2020 · 1 Comment

Our first meeting for the year 2020 was amazing. Sweetness from Oyemam Auto-immune Foundation shared with us her lived experience as a person living with Lupus, the challenges she went through, the high cost of treatment, her call to the Government to support the treatment care and support for persons living with auto-immune conditions and her Faith in GOD that kept her going. The mothers present were empowered by her story to keep up the fight against autoimmune and neurological conditions and to support the cause of calling out to the Government to support the treatment of autoimmune and neurological conditions by its inclusion on the NHIS and awareness creation.

Sharecare – We Care❤️❤️❤️!

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We Had A Good Time!

December 22nd, 2019 · 1 Comment

Thanks to the Lordina Foundation and Mmofra Foundation, our Christmas party came on on Friday 20th December. We sincerely thank the two foundations as well as Hon. Zanetor Rawlings our MP, Hon. John Majisi, and our members Nana Akwasi and Farida for their support.

Our thanks also go to Bishop Dr. Hackman, BBNZ, Church of Pentecost, Anna and Christopher for the goodies and finally to Father Christmas for making it really feel like Christmas.

We enjoyed ourselves thoroughly!

Healthy snacka
Father Christmas sharing good cheer
A great cake!
Bishop Dr. Hackman arrived with gifts
Cutting the cake
BBNZ brought gifts and yes that’s Oh! Nii to the left. Welcome back our son!

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Lordina Foundation donates to Sharecare Ghana

December 19th, 2019 · No Comments

The Lordina Foundation has given foodstuff and financial assistance to Sharecare Ghana.

We thank Mrs. Lordina Mahama for her kindness now and in past years.

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PATIENT SOLIDARITY DAY 2019

December 6th, 2019 · No Comments

We join all patient groups and the Ghana NCD Alliance to observe Patient Solidarity Day. Please check out

https://ncdalliance.org/news-events/news/new-our-views-our-voices-mini-films-from-ghana-and-india-launched

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Sharecare, We Care!

November 7th, 2019 · No Comments

After a very interesting support group meeting on 26th October 2019.

Thank you Nii Anyitei, Valerie and Derickk And thank you Aunty Annie for the lunch!

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IT COULD BE YOU!

November 3rd, 2019 · No Comments

Mental health problems can happen to anyone, it is just like any other illness. You can find out more about this new campaign from @mehsog at www.itcouldbeyou.com.gh. #Bemorekind

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Today is Internatiional Stammering Awareness Day

October 22nd, 2019 · No Comments

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A Tribute to Mr. Gad

September 28th, 2019 · No Comments

We try to find purpose at every stage of our life. For us at Sharecare Ghana, Mr. Joseph Gadagbui’s purpose was to organize us as an organization. Popularly called Mr. Gad, he guided and directed us, and we relied on him in every aspect of our work. As an association of persons with autoimmune and neurological conditions as well as families and caregivers, we gave mutual support and companionship, and we know he treasured this.

Mr. Gad was Company Secretary for Sharecare Ghana, but did much more than perform that role. He was our father and counselor; he chaired our support group meetings; he visited ailing members; he wrote our letters and guided our administration… and we did not have the opportunity to say thank you.

When he told us at our support group meeting in July that he had numbness in his shoulder and had been to see the physiotherapist, we thought it was the usual aches and pains of living with a neurological condition. We did not suspect that that was his way of saying farewell.

The news that Mr. Gad had passed on, shocked all of us. Everyone had something to say: Who is going to fight for my daughter; Who will ensure we get the District Assembly Common Fund; Who will follow up on the letter to the Director-General of Ghana Health Service; Who will put pressure on Parliament to include our conditions in the National Health Insurance Scheme…

Mr. Gad, you will be sorely missed by your Sharecare family, especially for your sense of humour.

Farewell and rest in peace, till we meet again.

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