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Commemoration of International Day of Persons with Disability

December 3rd, 2014 · No Comments

GHANA FEDERATION OF THE DISABLED (GFD)

COMMEMORATION OF INTERNATIONAL DAY OF PERSONS WITH DISABILITY

3rd December, 2014

Press Release

Since 1992, United Nations set aside December 3rd of each year as the International Day of Persons with Disability (IDPWDs).  The annual commemoration of the day has the following objectives among others:

  • Promotion of understanding of disability issues
  • Mobilization of support for the dignity, rights and well-being of PWDs, and
  • Increase of awareness of the benefits to be derived from the integration of PWDs in every aspect of political, economic and cultural life.

This year, the commemoration is also intended to further raise awareness of disability as a cross-cutting development issue, and to usher in the sustainable development goals which will succeed the MDGs.

Every year UN gives the theme on which the worldwide observance of the day hinges. The theme for the 2014 celebration of the IDPWDs is SUSTAINABLE DEVELOPMENT: THE PROMISE OF TECHNOLOGY”. Since the cradle of mankind, technology has always impacted in the way people live, work and play. For instance, the information technology has led to increased connectivity between and among individuals, between businesses, and has even made the world a global village, where everybody is a neighbor to the other. One may therefore not be in error to conclude that the reasoning for curving this year’s theme around technology could be to harness the power of technology for the promotion of inclusion and accessibility for full and equal participation of PWDs in society and to shape the future of sustainable development for all. In spite of the enormous benefits of technology, it is regrettable that not all people, especially PWDs, the world’s largest minority, can afford or have access to benefits of the technology.  This claim is sustained by the invisibility of PWDs in mainstream development framework and processes.

Ghana’s theme for the commemoration of the Day, MAKING GHANA ACCESSIBLE FOR PERSONS WITH DISABILITY: A CONCERN FOR ALL, goes beyond the international theme centered on technology to include the breaking down of environmental, especially the built environment, communication, and attitudinal barriers, to pave way for the enjoyment of full and equal rights on equal basis by PWDs.

The Ghana Federation of the Disabled will like to use this commemorative day to make the following appeals to government:

  • To make assistive technology available,  affordable and accessible to PWDs  in the area of   communication, information, and mobility
  • To adopt sign language as one of the languages  for official activities and  for instruction, especially  the training of  professionals
  • To without delay produce and gazette the national standards for the provision of accessibility in the country. Some section of the public are already prepared and willing to comply with Section 7 of Act 715, but due to the absence of national standards, some are constructing what can best be described as “killer ramps because they are steep with very slippery surfaces. Such ramps being dotted around the country will not be useful for PWDs and will therefore not solve the physical accessibility problem in the country. The absence of the national standards is likely to provide a haven corporate organizations and government ministries, departments, and agencies failing to meet the deadline of the ten-year moratorium which ends in 2016.
  • To implement all pro-disability legislations and policies, starting the setting up of the national implementation and monitoring committee, as per article 33 of the United Nations Convention on the Rights of PWDs (CRPD), to implement the provisions of the CRPD and to review the PWDs Act 715 as per article 4(b) of the said Convention.
  •  To convert the national council on PWDs into an authority to give it the needed autonomy to carry out its mandatory functions which include proposing and evolving policies and strategies to enable persons with disability enter and participate in the mainstream of the national development process,  monitoring and evaluating disability policies and programmes,  formulating strategies for broad-based inter-sectoral, interdisciplinary involvement and participation in the implementation of the national disability policy, promoting  studies and research on issues of disability, providing  education and information to the public on issues of Disability and  maintaining  a register of persons with disability, among others.

GFD also wants to call on the various religious bodies to make the gospel available and accessible to PWDs. For instance, most church buildings, parishes, and mosques are physically not accessible to PWDs. Sermons or preaching hardly includes sign language. The pulpits are not also used to sensitize the congregation on disability.

GFD further calls on the media and Civil society organisations (CSOs) to join the crusade in promoting understanding on disability, and working towards a barrier-free country where PWDs will enjoy fully and equal rights on equal basis, at all levels,  with those without disability , including participation in decision-making processes.

The Federation salutes all Persons with Disabilities as we commemorate this day and pledges its resolve to work for the recognition and promotion our rights in Ghana.

Thank you and May God Bless you All.

Ghana Federation of the Disabled (GFD)
P.O. Box AC 40, Arts Center, Accra
Tel: +233 0302-240530, 240-867200
Email: info@gfdgh.org
www.gfdgh.org

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SOUND BYTES FROM GHANA HEALTH SERVICE

August 31st, 2014 · 1 Comment

To protect yourself and your family from the Ebola disease:
Avoid contact with infected persons living or dead;
Do not touch dead or live animals like bats, antelopes and monkeys;
Wash hands regularly under clean running water;
Cook all foods very well;
Persons showing signs of Ebola should be taken immediately to the nearest health facility.

photo 2 photo 1_2 photo 1_1 photo 1 photo 4 photo 3 photo 2_1Officials from Ghana Health Service educated Sharecare members on Ebola on Saturday 30th August 2014.

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Krispat with Sharecare

July 29th, 2014 · 1 Comment

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Krispat, an organization that provides care for hearing disorders, met Sharecare members at the weekend. The educative talk and lively discussion ended with members getting their ears checked.
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I got 99 problems … palsy is just one

March 30th, 2014 · No Comments

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Therapy begins at Sharecare Centre

March 29th, 2014 · 1 Comment

Thanks to “A Taste of Ghana” and volunteers from Korle Bu, we have started weekly physiotherapy sessions at our centre in Osu.

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A speech therapy volunteer is also with us from Development Without Borders (DSF) for the next three months. Other volunteers are painting the centre at their own cost.

Looks like a very good beginning by God’s grace.

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Diesel features PWD

March 18th, 2014 · No Comments

Diesel, US-based designer, features Jillian Mercado, Executive Editorial Director for WeTheUrban magazine on the Spring/Summer campaign. Jillian is 26 and has Muscular Dystrophy:

http://www.stylelist.com/read/diesel-ad-stars-wheelchair-bound-fashion-editor-jillian-mercado/?ncid=tweetlnkusstyl00000003&ts=1394394398

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Living With Sickle Cell Anemia

February 12th, 2014 · 1 Comment

By Jenni Bristow.

Managing any chronic illness is a difficult path, and sickle cell anemia is no exception. The World Health Organization estimates that 2% of Ghana’s population, or nearly 18,000 people, suffer from sickle cell anemia, and 1 in 3 people are carriers of the genes that cause it. If you or a loved one suffers from sickle cell anemia, do not lose hope. While the disease can be debilitating, with proper medical treatment you can live a full and healthy life.

What is Sickle Cell Anemia?

Sickle cell anemia is a mutation of the hemoglobin cells in which they form a crescent shape. These abnormal cells clog the arteries, causing extreme pain, organ damage, and higher chances of infection. This condition is very serious in Ghana, as proper medical treatment can be difficult to come by. It’s not always practical to travel long distances for quality medical care, but treatment is essential to reduce the symptoms and complications of sickle cell anemia. The sickle shaped cells die off within weeks, and cannot be easily replaced naturally by the body’s bone marrow, which normally produces new blood cells every six months. Bone marrow transplants can ease the body’s burden of creating cells, but such treatments are not readily available in Ghana.

Sickle Cell Anemia Treatment

Seek out treatment regimens that help the body cope with the symptoms of sickle cell anemia, and ease the pain that these oddly shaped cells can cause. Children should receive their full set of immunizations, as well as twice daily doses of penicillin. Folic acid and blood transfusions may also be recommended to prevent severe anemia. A new medicine called Hydroxyurea helps prevent cells from turning into sickle shapes, but is not widespread in Ghana. Proper diet and clean water helps the body fight off the symptoms of sickle cell anemia. Extreme cold exacerbates the pain attacks and should be avoided. These excruciating bouts of pain are often treated with prescription opiates. However, opiates are addictive and this can lead to overuse, even if prescribed by a doctor. Remember to follow all sickle cell treatment guidelines as told to you by a healthcare professional, and speak up if you believe opiates are becoming a problem. While prescription opiates may seem like a good short-term solution, over time they can become as much of a problem as the sickle cell anemia.

Prevention of Sickle Cell Anemia

Sickle cell anemia can be prevented, through screening and education. Young people in Ghana should be tested to see if they are carriers of the sickle cell genes. Once they know of their genetic status, they can make educated family planning decisions in the future. A couple where both parents have the genes have a 1 in 4 chance of having a baby with sickle cell anemia. While young lovers and newlyweds may be uncomfortable talking about the chance of passing sickle cell anemia to their future children, the knowledge of how devastating the disease can be should be enough to prompt them to make difficult decisions.

If a woman is pregnant, there is a screening test that can determine whether the baby will be born with sickle cell anemia. This information can be difficult for the young mother. If a positive result is found, she will have time to educate herself on the baby’s future treatment options. However, some women may opt to terminate the pregnancy, if the burden would be too difficult to bear. While this is a personal decision, sickle cell anemia need not be a death sentence. The average life span of a person with sickle cell anemia is 48 years. With proper care, children can live a long life and be productive members of society.

Government Initiatives for Sickle Cell Anemia

National programs can help the citizens of Ghana manage sickle cell anemia effectively. The creation of hospitals and treatment centers in rural locations will help make treatment more accessible for families affected by the disease. The need for widespread education about the disease indicates that teachers and social workers will help provide necessary counseling and support to those at risk for passing the genes to their offspring. Scientific studies and research within Ghana are crucial for advancements in sickle cell anemia treatment, and to determine the areas in Ghana that are the most vulnerable.

Sickle cell anemia is a lifelong illness that requires a comprehensive treatment plan. Accommodations for the disease will be needed throughout your lifetime, to manage pain and ensure good health. However, with diligent care, you can live your life, knowing that you have taken advantage of every treatment option within your reach. The future holds many possible treatments for sickle cell anemia and a brighter future for generations to come.

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A Taste of Ghana raises over $4000 for Sharecare Ghana

January 27th, 2014 · 5 Comments

Photo by Cedric Ajavon

On January 25, 2014, A Taste of Ghana, an evening curated to share the wonderful flavors of Ghana, spotlighted and created awareness of Sharecare Ghana (Sharecare4u), an organization founded to empower people suffering from autoimmune and neurological conditions in Ghana.

The event, organized by Ayesha Harruna Attah, daughter of Sharecare founder, Nana Yaa Agyeman, and her friends Efua Opoku and Nana-Ama Kyerematen and various sponsors, brought together 100 people at Bat Haus, in Brooklyn, NY. Charles Cann, creative director of Tropical Ghana, prepared the delicious food.

It was a memorable night, which included a raffle draw, a documentary, comments from the main organizer, and plenty to eat and drink. Through ticket sales, the raffle, and various donations, A Taste of Ghana raised over $4000.

Ayesha posted on Facebook the following day: “So grateful to everyone who showed up yesterday for A Taste of Ghana. Special thanks go to Charles Cann of tropical Ghana for the mouthwatering dishes he prepared.Big, big thanks to our sponsors: A Peace Treaty, afridiaspora.com, Amanda Uprichard, Bat Haus Coworking Space, Design 233, GhanaNewsMedia.com, Il Vino Torchio, Mataheko Restaurant and Lounge, Mohammed Naseehu-Ali, Powder Necklace: A Novel by Nana Ekua Brew-Hammond, The Sampler, and The Tennessee Williams/New Orleans Literary Festival.Thanks for helping us raise funds for Sharecare Ghana.”

Photo by Cedric Ajavon

One of Sharecare Ghana’s successes is the establishment of a therapeutic center for children with neurological conditions. The center now needs to be equipped. The money raised will fund speech therapy, physiotherapy, and some of the following equipment: therapeutic mats, physio balls, toys, static cycles for kids, a treadmill, walkers, a standing frame, corner seat, wedges, gaiters, and an office desk and chair.

Sharecare has expressed gratitude to ATaste of Ghana for this remarkable fundraiser and for the funds that are continuing to come in after the event.

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A Sons Determination – My story

March 7th, 2013 · 3 Comments

By Iris Anie-Annan

On the 29th August, 1999 , I gave birth to my first son .  The father and I were so happy. A few days later when I sent him to St Luke’s Clinic, he was diagnosed with Jaundice.

My nightmare began. We were transferred to 37 Military Hospital. For two weeks we stayed at the Hospital till we were discharged.  The jaundice had been severe and he was diagnosed as having mild cerebral palsy. What a blow it was ! The Doctor suggested early physiotherapy at the age of eleven months.

MILESTONE

By the age of two years, Kwasi was walking but not really well. By three he began speaking but not clearly. My mentor Mrs. Lydia Bedwei (Farida’s mum) asked me to let him attend a normal school. You bet I did. For 10 years it was constant physiotherapy at 37, three times a week. I am grateful to his father GYEBI for that determination and support.

Something wonderful about Kwasi was his determination and persistence.  I prayed to God to help Kwasi and to give me strength and energy to help him . For five years, I fed him and bathed him. He was quite shaky in his movements and had quite a bit of spasm. He fell constantly anytime he attempted running but he always got up with a smile and would say “ I ‘m aweright (alright)”.

In between there were  checks with Dr. Badoe as well.

IMPROVEMENT OVER THE YEARS

He began to improve as he joined regular school. He did not think his disability to do things right was an issue. He had confidence and he reassured me it would be well. And well it was.

I lost my second son at two months but the third one survived. His name is Kojo and he has been of tremendous help to his older brother.  He is able to dress himself, take a bath and even feed himself. He is able to express himself well and can share a problem he has with you.

LIFE AT SCHOOL

It had not been easy with him in a regular school but I believe the Lord heard my prayer many years ago and gave me that energy and confidence.  I pushed the teachers at his school to understand and accommodate him. I also told him that he could do it and he is doing it. It was not easy for the teachers to deal with a child of his caliber but I encouraged them and urged them on. It’s easier now he is in year 6. He is able to defend himself and know right from wrong.

CHALLENGES

His ability to communicate his thoughts to paper has been his challenge. He stores information and remembers date like a computer but the School has been most helpful in his written examination. He does extremely well in ICT, History and Geography and Languages sometimes.  He gets easily frustrated when things do not go the way he wants but he understands when it is explained to him.

Sometimes he could be clumsy in handling items and not very precise when wearing shirts with buttons and tying laces .

WHO IS KWASI

Kwasi is an intelligent 13 year old young man whom I am terribly proud of. He is in his final year grade 6. He is determined and very keen on sports especially football. His speech could be better but you will not believe that Kwasi can run up and down the stairs unaided. He thinks very clearly and reasons quite well even above some of his peers. He asks intelligent question and has a strange premonition of events to occur.  He is respectful and a thoughtful child. I  am doing all I can to make sure he gets a good education and I am so hopeful that he is going to be a GREAT person one day.

To God be the glory for giving me a son like KWASI.

My promise to GOD is to encourage parents who have given up.  I have  and will not give up because KWASI has proven to me he can do it.

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Sharecare Ghana @ 5

February 28th, 2013 · 7 Comments

By Lara Cookey, Accra, Feb 2013

When I became unable to sit up for more than a few minutes at a time, and the most basic tasks became difficult, I found myself bed ridden, and needing help with so many things. I had profound muscle weakness, and realised with slow clarity that I was now disabled. My symptoms were mild and sporadic at first, spanning back some twenty five or more years, and now I can see the cause of some ‘episodes’ in my teenage years. I am fortunate to have got a diagnosis some five years ago, and was told the culprit is an ‘auto-immune’ condition. A situation whereby one’s own body goes ahead and wages a war against itself. I discovered that each individual is unique in how the effects of this self-body-war takes place. There are all kinds of names for this underlying auto-immune anomaly-Multiple Sclerosis, Diabetes, Rheumatoid arthritis, to name a few that most people have heard of, but my assailant is called Myasthenia Gravis.
When I was diagnosed, I started to search for support groups in Ghana, indeed I wrote to the Myasthenia Gravis Association in England, and also the Association in Australia by email, in my bid to get together with other people living with this condition. Both groups regretted they could not offer much support beyond my joining their online forums.  Their websites had a lot of information that assisted me greatly in understanding, and coming to a place of successful management of my condition.
I heard about Sharecare Ghana through a friend and visited their website. One thing led to another, and I began to attend meetings.
It has been a great journey for me, since the early days. It was so valuable to my psychological well being to meet other people with similar stories, and varying degrees of disability. I understood better than ever before what it means to be disabled, and that is not just my own personal experience, I was enriched to hear other people’s account of their experience..
Sharecare Ghana has become more than a support group for me, I have been given the opportunity to contribute my effort to the support of needy children with neurological conditions. I have become bolder in advocacy for the disabled, and people living with neurological conditions. Apart from that, I now have a group of new friends who look out for me, and I look out for them. People living with disability can be the most resilient, positive minded people you will ever meet.

I have now returned to full mobility after several years of management through medications and physiotherapy. With many of these conditions, medication alone is not enough. If there is anything I would say was of great need apart from medications, it is physiotherapy and psychological counselling. Learning to accept my condition was greatly enhanced by my interactions with Sharecare Ghana
I doff my hat to the founder Nana Yaa, whom we all fondly call NY. Do not be fooled by the outward appearance of this diminutive looking lady, walking with a frame. She is a passionate, and strong advocate with a bold vision to reach out to others in a similar predicament as herself.  Her drive and enthusiasm in the face of her many challenges has been an inspiration to me. On the occasion of the fifth anniversary of Sharecare Ghana, I send many congratulations, and gratitude on behalf of those who have received support in one form or another. I applaud this effort to reach those who have been forgotten. This means by which a voice is given to those who suffer various challenges, silently. NY is our unsung hero, and we are all grateful to God for her life.

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