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GENDER MINISTER VISITS SHARECARE REHAB CENTRE

May 20th, 2019 · 1 Comment

The Minister of Gender, Children and Social Protection, Mrs. Cynthia Morrison has visited the Sharecare Rehab Centre at Osu Anorhor.

After interacting with the mothers and children and staff, she promised to facilitate a bigger accommodation for the continued existence of the Centre.

The Centre Manager, Mrs. Rebecca Sai had earlier told the Minister that it was impossible to continue paying commercial rent for the Centre, and that the space was too small for the number of children attending the Centre.

The GFD President, Madam Mawunyo Yakor-Dagba was in attendance during the visit.

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Mothers’ Day Celebration with Children with Disabilities

May 11th, 2019 · No Comments

The Ministry of Gender, Children and Social Protection held a party for mothers of children with disabilities in celebration of Mothers’ Day and in appreciation of their hard work. Ten Sharecare mothers were invited to the function.

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World Lupus Day

May 10th, 2019 · No Comments

Together we can beat lupus.

Happy World Lupus Day!

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1,000 DISABLED WOMEN ENTREPRENEURS RECEIVE GH¢2 MILLION SUPPORT

May 1st, 2019 · No Comments

President Nana Addo Dankwa Akufo-Addo has presented GH¢2 million to 1,000 women entrepreneurs with disability, under the Presidential Empowerment for Women Entrepreneurs with Disability.

At a brief ceremony at Jubilee House, on Tuesday, 30th April, 2019, President Akufo-Addo said the programme is to help improve the livelihoods of the disabled, and also help realise goals no. 5, 8, and 10 of the 2030 United Nations Sustainable Development Goals.

“Having set a fund target of some GH¢4 million, over the next two years, to support disabled women in business, the Ministry of Business Development has so far raised GH¢2 million of the amount. The one thousand beneficiaries will not be required to pay any interest on the amounts they are going to receive,” the President said.

“They will only pay back 50% of the principal advanced to them. This gesture is part of my government’s support to our disabled women entrepreneurs, to help them scale up their businesses, and employ more people. We anticipate that, with the monies being given to them today, they will and should be able to employ, at least, two persons.”

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Augustine on Duty!

March 23rd, 2019 · No Comments

Thank you for all you help Augustine. Sharecare children have missed you.

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Today is Patient Solidarity Day 2018

December 7th, 2018 · 3 Comments

Sharecar Ghana releases online survey report in partnership with International Alliance of Patients’ Organizations  

Today is being observed across the globe as Patient Solidarity Day. This year, the International Alliance of Patient Organizations (IAPO) members, patients, healthcare organizations, policy-makers, academia, institutions, industry and other stakeholders are calling for safe  medications and healthcare for all. Patient Safety is a critical global public health issue, which plays a crucial role in enabling and supporting health systems achieve sustainable and effective Universal Health Coverage (UHC) – one of the Sustainable Development Goals (SDGs).

Every patient has a right to receive medication and healthcare that are safe, effective, and legitimate. Chance should not be a factor in whether or not one receives safe healthcare and quality medicines.

In the run up to Patient Solidarity Day (PSD) 2018, Sharecare Ghana in partnership with IAPO embarked on an online survey to engage the general public on its knowledge of autoimmune and neurological conditions and to also champion the cause of the ‘fight the fakes’ campaign against fake medications in the system.

This survey was conducted from 23rd November 2018 to 3rd December 2018 (10 day survey). The questionnaire was shared via bulk email, WhatsApp and on Sharecare Ghana’s social media platforms.

The survey was divided into two parts. The first part dealt with autoimmune and neurological conditions knowledge and prevalence, while the second part dealt with awareness of fake drugs and their danger.

Bio Data

Respondents were all Ghanaian; 65% were female and 35% male. The age range was as follows: 5% between 13-19 years, 25% between 20-29 years, 30% between 30-39years, 5% between 40-49years, 15% between 50-59 years and 20% over 60 year. Respondents were from three out of the 10 regions in Ghana, with 90% from the Greater Accra Region, 5% from the Eastern Region and 5% from the Central Region.

Awareness of Autoimmune and Neurological conditions

Data gathered from this section revealed that 35% of rrespondents have an autoimmune / neurological condition, 25% are friends of persons with autoimmune / neurological conditions, 10% are caregivers and 30% are relatives of persons with autoimmune / neurological conditions. With the conditions known to these persons 30% had knowledge of Rhematoid Arthritis and Spondylosis, 25% knew Muscular Dystrophy, Lupus and Type 1 Diabetes, 10% knew of Motor Sensory Neuropathy  and Thyriod conditions ,Vasculitis, Neuromyelitis optica (Devic’s Syndrome), Multiple Sclerosis, Morfan each had 5%.  75% of patients have had their conditions diagnosed and 25% have not been diagnosed.  65% said their condition is being managed with diet, 60% by medication and 55% by physiotherapy. One participant says: “I do things that keep me calm and I eat right”.

As to  whether respondents belong to an organization or support group, 75% said yes while 25% said they do not belong to an organization or suppoprt group. A follow up question revealed that 70.6% of respondents  are members of patient support groups and 29.6% are volunteers.

Respondents were given a list of issues to select which do not currently receive the attention they deserve from national decision makers.

The implementation of existing laws on diseases and disabilities by the authorities had 75%,

80% for increasing availability, access and funding for early diagnosis,
75% for improving access to treatment (availability),
85% for lowering cost of treatment (affordability),
55% for improving access to new treatment options and clinical trials,
65% for training health care providers,
20% for addressing end of life concerns and palliative care,
45% for improving access to psychological care,
50% for providing integrated care (combined medical, psychological, and social support),
30% for offering disease management education and counselling for self-care skills,
30% for the creation of standards and guidelines to link clinical and community support programs.

Awareness of counterfeit drugs and their danger

This section started by asking  10respondents what instinctively comes to mind when they hear the word counterfeit or counterfeiting. 60% said money, 30% medicine, and 10% said electronics. Moving on, 85% knew about the existence of counterfeit medications and 15% did not. 5% could identify counterfeit drugs, 60% could not and 35% had no idea what counterfeit drugs are.

40% do not have information about being exposed to counterfeit drugs, 30% have little information and 30% have some information about being exposed to counterfeit drugs.

95% of those who took the survey believe counterfeit drugs are definitely dangerous and 5% said they can be dangerous.

It is no surprise that 55% of respondents believe counterfeit drugs can be encountered when travelling as tackling  this has been an ongoing challenge for the Food and Drugs Authority. 15% of respondents said they could encounter counterfeit drugs via official distribution, 15% from other services, 10% online and 5% had no idea. 65% think that there may be counterfeit drugs but are not sure, 20% believe there are undoubtedly counterfeit medicines and everyone knows it, while 15% do not know. 95% have never contacted the authorities on counterfeit drugs while only 5% have.

If any conclusions may be drawn from the data, the survey clearly reveals that there is a fair idea of knowledge about autoimmune / neurological conditions as well as the existence of counterfeit drugs and their danger. Sharecare Ghana wishes everyone a happy Patient Solidarity Day celebration, a Merry Christmas and a Happy New Year in advance.

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Patient Solidarity Day 2018

November 24th, 2018 · No Comments

As part of the celebration of Patient Solidarity Day (PSD) on the 7th of December 2018 this survey has been developed to create awareness of autoimmune/neurological conditions as well as the existence of fake drugs in our system. This survey will take not more than 3 minutes of your time and your responses will make all the difference.

Thank you.

 

Please click HERE.

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We are making our physio equipment with cardboard

October 15th, 2018 · 1 Comment

Sharecare Ghana has begun a project titled: Physio Equipment Production and Training for Mothers. Mothers of Sharecare children are learning to produce their children’s physiotherapy devices using paper technology.

The project is sponsored by EurHope.

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Sharecare mothers start producing liquid soap

October 15th, 2018 · 1 Comment

It’s nice to see that our mothers have been trained to make liquid soap. This goes a long way to cater for themselves and their families as they will be able to create businesses and earn money for themselves with the skills acquired. This project is sponsored by Ghanaman CRG Trust Fund.

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2nd CP Awareness Campaign launched

October 8th, 2018 · No Comments

The 2nd Cerebral Palsy Awareness Campaign was launched on World CP Day (6th October) at the Prince Emmanuel SDA Church in Ringway Estates, under the theme “Celebratlng and Creating Powerful Voices for People with Cerebral Palsy”.

Dr. Abena Tannor from Komfo Anokye Teaching Hospital gave a comprehensive presentation on the prevention and management of Cerebral Palsy. She explained the causes, signs and symptoms, effects, rehabilitation and  the role every Ghanaian should be playing.

She said:
Cerebral Palsy is a one time damage to the brain;
It cannot be cured but it can be managed;
Rehabilitation is very important;
Simple adaptive devices can help.
She showed images of simple devices that can be made at home to help children with CP.  
Dr. Tannor said Ghanaians should get involved:
Speak out
Education – rights,  inclusion, stigmatization
Volunteer
Employ persons with disabilities and 
Raise/Donate funds.

Farida Bedwei, a software engineer shared her experiences as an adult with  Cerebral Palsy in Ghana. She said her mates in primary school were very helpful because they had not learned to discriminate. She reminded people to ask how to assist a PWD rather than assume that they know.

Suzzy Darko of the Special Mothers Project recounted how her family had tried to cure her daughter of Cerebral Palsy and had given up on her because she would not go along with their methods.

Nii Anyetei Akogyeram founder of Cerebral Palsy Awareness Ghana launched the campaign.

 

 

 

 

 

 

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